Friday, November 28, 2008

Exceeding my standards..already?!?

Lot's to be thankful for again this Thanksgiving, family, friends, a roof over our head, and a gracious God of course! We are thankful to share whatever we have with others including Dane's journey...which we have an entire new list of things to be thankful for this year when it comes to him! We have an amazing little boy who is walking, talking, smiling, laughing, (ummm...sometimes hitting and pinching too!) and darn determined to figure out the world around him! He just had a check up and he is in the 95 percentile for his height and in the 75th percentile for weight...and that is for his actual age, NOT adjusted!!! This is great for a preemie, it usually take two to three years for a 26 weeker to catch up to his peers...and he is exceeding them in under two years!
Everyone was healthy and we were happy to spend Thanksgiving with the whole family this year. We had a great time eating yummy food and catching up with everyone. Dane found his way to the piano, where he sat down and played while we poorly sang...hard on the ears but cute none the less!



Sorry about how dark the video is, it was taken with my camera's video option and as you will see it's not very good quality. I need to learn bring my camcorder with me more often!

Tuesday, November 18, 2008

I've lowered my standards!

I have come to the realization that posting on a monthly basis will have to be enough! I will try to post more, but once a month is my official goal!

We have had a wonderful month, thanks in part to some gorgeous weather. There is a small window after the weather gets nice and before the brown cloud rolls in...and that is what we are enjoying right now. Dane loves to play outside, he is especially happy to just roam around the yard with a stick and explore. He loves to look at bugs, and move rocks from here to there...then back again! His speech continues to be taking off, tonight Gage taught him to say "pound it" then do the knuckle bump! He is still using sign language, but less and less now that he can repeat most things, however refuses to say certain words that he has been signing...like "more", "please", "drink", and "thank you". He will sign them, but when I tell him to say them with his mouth, he just continues to sign only with his mouth open! It's very funny!


I have seen an improvement in his breathing since starting the treatments last month, he can play a few minutes longer before the coughing and wheezing start. Looks like we will not be approved for the RSV shots this year, not a big shocker to us. Our co-pay would have been around $800.00 every 28 days, and we couldn't afford it anyway...who could??? So, we are limiting his exposure once again. No more taking him shopping during busy hours, no malls, no day care, no being around other kids that are in day care...etc. We are all praying to keep him healthy one more winter, in hopes that he will out grow his lung disease. His physical therapist, Miss M, thinks that he is doing great and has basically almost caught up to his peers in gross motor skills! Amazing huh?

Enjoy a quick video montage of what he has been up to the past month...